Showing posts with label hard days. Show all posts
Showing posts with label hard days. Show all posts

Friday, April 22, 2016

Whatever.

I really meant to blog more. I didn't want to start something, commit to something and then just fall off the bandwagon. And of course, that's what I did.

I really do enjoy it. I just feel like there's not enough time for it. Between doctor appointments, taking care of my dog, wallowing in my self pity, taking care of my unborn child, plus my diabetes, I just get lost and extremely overwhelmed. But maybe that was just a hump and I'm getting over it. Maybe I'll start pumping out 2 or 3 blogs a week now.

Hey, It's worth a shot.

OK, updates, let's see... I reconnected with an old friend who I haven't spoken to in about 6 years. Well, I guess she reconnected with me really. Whatever. I'm glad she did. It was a terrible, painful part of my past that I thought about everyday, and wondered if what happened was supposed to, or if we just let our stupid 13 year old minds run rampant. Again, whatever, I guess. It happened and there's no taking it back. But anyway.

Like I said, It was a painful part of my life and was always in the back of my mind, weighing on me and causing me small amounts of anxiety, which God knows I don't need. After we talked and reconnected I felt so much better. And It's one thing I can now say doesn't weigh me down anymore. which, at this point in my life is an amazing thing for me. Everything has just seemed to be weighing me down this past year and I have to say, It feels pretty damn good to have one less thing. I feel better, I know its better for my kid, and the people who love me.

When you have anxiety, it doesn't only affect you, it causes the people around you pain. It causes them stress and worry and hurt and sadness and confusion as to why what's happening to you is happening. And it sucks because not even you know. Whatever, though.

My insurance changed and they no longer provide coverage for the pump I've been on since July. So I'm switching pumps. Right now I'm on the Omnipod by Insulet, and I'm switching to the 530G pump by Medtronic. I have to say, I am excited, albeit a little nervous for what the future holds. I'm switching from a pump without tubing, to a pump with tubing. I think that will be the hardest thing to adjust to, honestly. Because the rest is just a learning curve.
I'm also receiving a CGM, or a continuous glucose monitor for all of you non-diabetics out there.
Basically it's a sensor that tracks your blood sugars so you will know if you're going too high, or too low. I am really pumped for that. It will be nice to have the awareness and knowledge of my constant blood sugars.

Like tonight, it really would have come in handy.

Every night this past week I've been waking up around 1:30 AM and have been unable to go back to sleep, usually until 5 or 6. then I sleep until 8 or 9 and eat the rest.

Whatever.

Tonight I woke up around 1:30 and here I am blogging instead of sleeping at 4:29 in the morning.

My husband's alarm is going off for work. Maybe I'll let him miss it and be late. Haha.

Pregnancy is really hard. I feel like everyone told me, but maybe I just wasn't prepared for all of it. It has so many more aspects than just the physical parts. Which, believe me, if you don't know, are surely hard enough. My stretch marks have stretch marks. I was wearing a bikini this time last year, and now, I will NEVER WEAR A BIKINI EVER AGAIN AS LONG AS I LIVE.

But, whatever. Who needs bikini's, right?

I don't want to get into all the woes of pregnancy so I'm not going to. Not in this post anyway.

My baby shower is this Sunday, and tomorrow I am going to get my nails done for the first time in, probably about a year. I used to love doing that. Now, I gotta be honest, it seems a little impractical. Maybe I'll feel differently tomorrow, I don't know.

I'm scheduled to be induced between my 38th and 39th week of gestation, probably sooner the further I get in my pregnancy. Last week It was between 39 and 40 weeks.

I have weekly doctor appointments now. Usually one on Tuesdays, and one on Thursdays. NS testing every week, and in depth ultrasounds every week. On top of that I have endocrinologist appointments, training for my new pump and CGM, and my regular OB/GYN appointments too. I always thought the few weeks before a baby is born would be almost like the calm before the storm, but I was horribly, awfully wrong. foolishly wrong. It's just going to be a shit show until she pops out, and not too much easier after she does so. Even though I am sure it will be more enjoyable because I'll have a tiny human... Right?

Whatever.

It is what it is and I can't change 97% of it, so why try? I just need to work on my own happiness, my own calm. I need to be still.

It really helps me to make lists. I feel productive as I'm making a list, and like a super human when I can then check things off of said list. It's quite the thrill, really. I made a list tonight amidst my sleeplessness.

I like lists.

Peace, Mego out.

Tuesday, April 5, 2016

Puppies, Babies, And Death.

I had a fairly eventful week and weekend. Lots of doctor appointments, as usual, and it was my sister's birthday.

We also had an extremely unexpected and very tragic death in the family. I feel as though I am at a loss for words to write.

I think that blogging has been very good for me, it helps me process my emotions better, and focus on one thing fully. Which I am sure as you can imagine is difficult for me, because of all the things currently going on in my life.

This morning I had another doctor appointment, and me and my mother went to see the baby in my belly. Everything is measuring beautifully and she currently weighs in at 4 pounds, 3 ounces. We didn't get any photos to take home this visit because she had her arms over her face- again!

Last Tuesday she had to have an echocardiogram done, and the doctor was worried that one of her major arteries was massively too small, which would require surgery at birth, and all these things for Tim and I to think about, and stress over. We had an appointment at Children's Hospital of Philadelphia the following Friday to get it checked out. Turns out that the abnormal increased blood flow in her aortic valve is not cause by something like a tiny artery, the big concern, but could possibly be caused by a missing leaflet in her valve. A much more common heart defect.

I feel odd talking about my daughter's possible common heart defect in such a calm manner, because it is still just that, a heart defect. Ideally, she wouldn't even HAVE a heart defect.

But it is what it is and I can't change it.

If she does end up with a heart defect, I can't help but feel totally and completely responsible. Diabetics who choose to reproduce know full well that their offspring are much more likely to have organ and heart defects. I am selfish, and am willing to allow my child's quality of life to be lacking, simply because I want a baby.

I find myself downtrodden today. Sad, and lacking confidence, lacking conviction, and lacking motivation. I just want to lay in bed with my dog and watch netflix. And maybe eat a donut.

Death is tough to deal with. Everyone has their own coping mechanisms and outlets. But just the thought of it... I don't know. It leaves me feeling uneasy and angry. Mainly when the way is happened was violent, tragic, or just out of the ordinary.

Life is really really hard to deal with sometimes.

Yesterday I had an appointment with my cardiologist. They sent me home with a 24 hour heart monitor. I am wearing it currently. I have 3 hours and 27 minutes remaining, then I can take it off and return it to my doctor's office. I slept horribly last night, I was up most of the night.
It doesn't help that my dog has decided that he needs to go all the way downstairs every single night to use the bathroom. But I guess that is better than having to clean up an accident in the middle of the night.

I enjoy blogging, but I feel as though I am not very good at it. I feel scatterbrained, and random. I feel boring and uninteresting. I feel as though all my posts are the same.

I'm hoping to get more posts out there, maybe have a weekly quota I need to meet. Practice makes perfect, they say.

I think I'll go nap with my pup.

Peace, Mego out.

Wednesday, March 30, 2016

Mother Of Pearl

I seem to be having more bad days than good lately. I didn't want my blog to be a downer sad blog in which all I do is complain about my terrible doctors and poor health, but at this point I'm just discouraged and feeling like a downer, if we're being honest.

It's like everyday is just more bad news. Sometimes the bad news turns out to be my doctors over-reacting, and other times (most times) it's real bad news. And it's really discouraging. Angering. Saddening.

All of these feelings are not healthy, but all of these feelings are valid... I struggle with this daily. As a Christian, I want to have the ability to lean on God and let myself be comforted in the strength of His power, but in my flesh I struggle with negative feelings that are of this world. Stress, anxiety, feelings of helplessness, lost hope, bitterness, hatred, feelings of "Why me?" Among many other things.

It is so much easier to curl up in bed and cry about your life, and the shit storm it feels like its turning into, give into all the negative feelings. Cry out to the heavens, "WHY ME?" Hell, I do it all the damn time. I get little blessings throughout the day, or week, and maybe I just need to be better at focusing on them instead of the negatives.

 I don't know.

I don't know anything anymore.

I feel like I've got it somewhat figured out, then the hits just keep on coming. I said to my husband tonight, "What a week, huh?" and then he proceeded to inform me that it was, in fact only Tuesday.

Mother of pearl, let's coma this out until Friday, yes? Who's with me?! I do NOT want to deal with the rest of this week unless all it has in store for me is visits from people who I love, boxes of chocolates, and LOTS of takeout food.

On a lighter note, I should probably wait until I have people who are actually reading my blog, but you know... I'm impatient.

After you use the lavatory, do you wipe while sitting, or wipe while standing? I do it one way, and my husband does another. As do the rest of his siblings, same as him. (At least the ones I've actually ASKED.) It's kind of a private, personal question, I guess.

But anyway, I'm intrigued to say the least, to find out just how many people do it differently. I honestly was so shocked to find out anybody did it differently than I did! It had never crossed my mind.

Leave me a comment, or whatever else you can do on this here bloggy blog.

Peace, Mego out.

Friday, March 25, 2016

Eating Again, Little One?

Today I was looking through the thousand and something photos from our wedding and engagement shoot that I just figured out how to put on our new laptop, and I just kept thinking how pretty I was and how skinny I was and how badly I wish to be that size again.

And then it struck me how sick I was too.

I was diagnosed with type 1 diabetes just shy of 2 months after my "Happily ever after" day.

Should I do a little backstory? Probably. Here goes!

In September of 2014 I was hired at a local bakery called Delicious Orchards in Colts Neck NJ. They weren't supposed to keep anyone after the holidays, but ended up liking me and a few other people so much that they kept us after Christmas.
 It was amazing.
 I've never had a work experience like that before. I know a lot of people says it's like "Another family" but these people really were like my 2nd family. We laughed, we cried, we confided, we fought and we loved. I met some people who I will never forget, and I also met some people who I'd rather not ever see again, thank you.

Anyway, enough sappy shit. Where was I... Oh yea.

So when I started I had some pretty long days filled with lots of physical labor. I went from sitting on my couch watching netflix to working 5 days a week, 7 am to 5 pm (usually) if not later. Then after the holidays things started to slow down, as they usually did at the Orchard. But my hours changed. I started going in around 5 most mornings, it was time to make the donuts! Some mornings I wouldn't have to be in until 530, and others I had to be in at 4 or 430- depending on the donut  expectations during the week.

I hadn't really been feeling too well the past few months, and it intensified when my hours changed and I started my workday at 430-5 am instead of 7am. I thought I had just never adjusted fully to the whole working full time gig. But when I started working earlier, man oh man was I pooped. My head pounded constantly, I was always achy and had a lot of back and neck pain, and pain in my abdomen. I honestly thought i was just getting abs that you couldnt see under my pooch i have always had. Then I started losing a lot of weight, despite the amount of food I was eating... Looking back I can't believe how we didn't know something else was happening. How we didn't know something was wrong. I ate so much I don't even know how to describe it. Let's just say that EVERYONE in the whole place knew me by how much I ate. All the older ladies would always tell me to "be careful, it will catch up to you someday!" People who I didn't even talk to would walk by me on break and say "look at Megan! Is she eating again?? It's only 10 in the morning and I've seen her eat 3 meals already!" I'd just give them the finger and tell them they wished they could eat like me. Ha.

One of my close friends, we can call him Rozwald, this wonderful Italian man with the sweetest accent in the world would always jab me in the ribs with his elbow and say he couldn't believe how I ate. "Eating again, little one?" We would sit together at lunch and breaks every day and he would watch me eat and shake his head in disbelief.

And despite how incredibly much I constantly ate, nothing could quench the hunger I always felt, and nothing could quench the thirst. I would drink close to 2 gallons of water every single day. And don't even get me started on how often I peed. I was blessed to work with certain people who actually liked me, because when I say I was heading to the bathroom every half hour, I was heading to the bathroom every half hour. I used to joke and say they were going to fire me because of how many bathroom breaks I would always take.

Besides the constant pain I was in, plus the headaches, the eating and drinking and peeing, I was so exhausted. Which again I contributed to the fact that I just didn't get much sleep and I had to be up early for work. I honestly thought all of this was normal. And so I dealt with it. For months I dealt with it. Almost crippling tiredness, pain, sluggishness, moodiness, and weight loss. I thought this was normal stress related, teen stuff. After all, I was planning my wedding at the same time.

Fast forward to my wedding day. Everything went so well. There were some not so great things here and there, but overall, simply wonderful. I couldn't have asked for more in a wedding day!
Then we honeymooned, (which is a completely different blog post in itself) and returned home to our normal lives.

A few weeks after we got back, my husband and I filed for life insurance after the prompting of my wonderful parents. We were young, totally healthy and it would be cheaper the healthier we were. So we figured why not?

I remember a few nights after we filed, I came home after being out somewhere, I don't remember now. I walked into my living room where my parents were sitting just the 2 of them. Which is weird for my home because of all the people living in it. My mommy told me to sit down so I did, close to her. I said, " Come on guys, who died?" with a little chuckle. they smiled and said nobody died, but they got an unsettling phone call they had to tell me about. They said that the rep from the life insurance company, (also a family friend) called them directly and said I was rejected for my life insurance because I was a health risk and they couldn't risk insuring me.

I was rejected. I was rejected for life insurance out of nowhere.

The reps aren't supposed to call you, and it was odd that he did, so I knew it was serious. "Am I dying? Do I have cancer? Why would they reject me?" My mind was spinning.

My mom told me that my long term blood sugars were very high and I needed to go to the doctor and have them checked out.

My A1C was 12.3 And I was very sick. My doctor was baffled that I wasn't hospitalized. I count myself blessed because for many other type 1's, they find out they have diabetes because they end up in the hospital for days with syrup running through their veins instead of blood.
I know I was blessed. But It's still hard to feel sometimes when you're stuck with this lifelong disease that touches you every single day of your life.

My DO family was so good to me, so understanding and gracious about the whole thing. My doctors said that I shouldn't be working in the state that I was in, and I told the Orchard that, and everything was ok. I'm not saying that it wasn't an inconvenience to them because I'm sure that it was. But they were just so good to me and told me that I had a job when I wanted to come back.

3 months after I was diagnosed, we found out I was pregnant. to the shock of my doctors, I had gotten my A1C down to 6.9 and was seemingly healthy enough to carry a child.

My life was falling apart, but my dreams were coming true at the same time. I will admit, I wasn't in a good state of mind since my diagnosis, and only recently came out of that. It was the hardest year of my life and I felt very alone. Very sad and alone and abandoned by God and thinking thoughts that I am afraid to even admit to myself.

Sometimes I can only think, thank God I got pregnant when I did. Because I value this tiny life inside of me more than I value many things in my own, and I truly believe that through God, she saved me.

At my doctor visit last week, I found out my A1C is now 5.7 and my numbers have been alright. a few highs here and there but nothing I can't handle. (I say this now, but if we just keep in mind my last blog post, I'm sure I'll recant that in a few days.)

I wonder if my life will always be this roller coaster of happy and sad, or will it calm down and I'll mature a little (or a lot) and be more stable? Not that I think that I'm unstable, I just think that I'm only 19 and still have some growing to do.

I think it will be better when Maggie is here.

I can't wait to hold her in my arms.

Peace, Mego out.



Wednesday, March 23, 2016

My Sister's Dog Keeps Shitting On My Floor

Ok, but seriously. This dog pushes his way into my room and shits on my floor for no reason. Maybe he just doesn't like me. But he tries to cuddle with me so he must like me. Right?

I had another doctor appointment today. He's trying to tell me all this ish about how I don't know how to control my asthma (which I have had for about... 19 years of my life. Literally ever since I can remember.) It was my 2nd visit with him. He's one of my newer doctors. He's a fool I tell you, a fool. Maybe I should just find a new primary. Screw you, Dr. Carson!

He also wants me to have a pulmonary function test done. I am over tests and needles. Too bad I will never ever be able to get away from the latter. With the diabeetus and all. Oy.
   Keep in mind that this is the same doctor who ordered a CAT scan done STAT last month because he was 100% sure that I had a pulmonary embolism, AKA blood clots in my lungs.
I think hes a quack who is behind on his yacht payments and doesn't give a shit how he pays them. (Meaning he's ordering bullshit tests and scans on pregnant chicks, for fun.) Grr.

I'm tired today. Not like I had a bad sleep last night and I'm going to bed early to make up for it. Like I'm tired of being sick. I'm tired of having diabetes and other chronic illnesses that will never leave me for the rest of my days. My heart is tired and my brain is tired and I am struggling with today, and dealing with life.

But days are temporary. And feelings can be too... Sometimes.

 I know that I won't always feel like this. Some days will inevitably be worse than others, and some days I'll be happy and confident in my position in life, where I am and the progress I've made. Other days I'll look at my so-called progress and cry because I'll feel like I've gotten nowhere and I'm failing myself, my body, my child and everyone around me. I've had them days before and I'll sure as hell have them again.

Today is one of those think about my "progress" and cry kind of days.

My doctor wants me to have an eye exam because my eyesight is getting worse and we want to make sure I won't be blind by the time I'm 30 because of my diabetes.
I also need to go for some other test or scan or something the week after my daughter is born because I can't have it done while I'm pregnant because it will make her grow a third arm or some shit... Makes me think,  " What is that doing to MY insides?"
I guess in the end it wont matter too too much. I'll either live long and prosper or I wont, and I'm pretty content with either.

Peace, Mego out.

Monday, March 21, 2016

Intro? First blog post? I don't know what I'm doing.

I'm not entirely sure what my first blog post should be about. Should it be about me? Should it be about others? What am I hoping to accomplish? To help myself? To uplift others? To sort out the scramble that is my brain 85% of the time? I know I want to share my hardships, struggles, experiences and happiness with others. I think that's about all I know at this point.
 Let's get a few things straight here.
-Firstly, I love God, I love my husband, I love my mom, I love my dog and I love my unborn child.
-Secondly, I am not a professional writer! I am a mere child trying to adjust to adulthood as quickly as possible. I do not claim to be a good writer, or even an alright writer. I thought it would help me handle myself, my feelings and my emotions better than I handle them now.
 Lord knows.
-Thirdly, nerding out for one second so excuse me, but my kid is kicking the shit out of my laptop that is sitting atop mah belleh and it's making me giggle. Heh.
-Fourthly, (Is 'fourthly' a word? Sounds funky.)  My faith is important to me. More important than many things, if not everything. BUT (I'm sorry, Mommy!) Sometimes I have a bad mouth. I sometimes say bad words. Alright? Don't judge me, bitches. Only God can judge me.
-Fifthly, if I am ever talking about food that I have made in future blog posts, IT IS HOMEMADE UNLESS OTHERWISE SPECIFIED. My family takes pride in our food and how it is prepared. But also, I will probably explain the level of homemade certain things are, if I really want to get a point across.
My PDM is beeping at me to check my blood sugar. So I guess that's it for now. That's all that my mind could think of at the moment anyway. I hope I don't sound too self-centered or back-woodsy. I promise I'm not dumb... Most of the time anyway. But hey, if'n ya'll don't like it, ya'll can skedaddle and not read my friggin' blog. Even though I'm not sure why you wouldn't want to, because I think I'm pretty awesome. Usually.

Peace, Mego out.